The conference began with the words of Julio Mayol, Medical and Innovation Director of the Hospital Clínico San Carlos and Gustavo Guínea, Coordinator of Madrid Neurocenter and Director of the CTB. Both highlighted the importance of putting “patients” at the center of the System and the great value of conferences such as this edition of the Incubadora de Ideas on diseases such as Parkinson’s and Alzheimer’s so widespread among the population, both also highlighted the success of public assistance and being able to have direct contact with patients.
“The important thing is the contact with the patients, the challenge is to make things better” Julio Mayol, Medical and Innovation Director of the Hospital Clínico San Carlos:
“We have to approach what matters: people” Gustavo Guínea Coordinator of Madrid Neurocenter and Director of the CTB:
First Round Clinical experience
With the participation of patient associations: “Asociación de familiares y personas afectadas por Alzheimer y otras demencias neurodegenerativas (AFADEMA)” and “Asociación Parkinson Madrid”
Virginia Silva Zabaleta, Technical Director of “Asociación de familiares y personas afectadas por Alzheimer y otras demencias neurodegenerativas (AFADEMA)” tells us about the role played by Patient Associations:
Susana Donate, Neuropsychologist of the Asociación Parkinson Madrid presented in her intervention what are the risk factors of parkinson’s patients suffering from dementia, the profile of a parkinson’s patient, made an analysis of the behavior of a patient such as apathy, delusions etc., and ended with some advice for patients and their families:
Alberto Marcos Dolado, Neurology Service of the Hospital Clínico San Carlos, focused on Alzheimer’s patients, which are the types of Alzheimer’s disease, how we diagnose this disease, the resources and treatments available both pharmacological and management of the patient within their environment and I point out the areas of improvement:
Jordi Matías-Guiu Antem, specialist in Neurology at the Cognitive Neurology Unit of the Hospital Clínico San Carlos.
In his presentation, he talked about primary progressive aphasia, and the need to improve diagnostic tools:
Pedro Gil Gregorio, Professor of Geriatrics at the UCM, Head of the Geriatrics Service of the Hospital Clínico San Carlos.
He analyzed the processes of neudegeneration in the elderly. He also presented studies of the relationship between neurodegenerative diseases and changes in the retina:
Second Round, Research, results obtained and future lines
Fernando Maestú Unturbe, Professor of Experimental Psychology, UCM, Director of the LNCyC (UCM-UPM) CTB. His presentation was titled “Hypersynchronization as an early biomarker in Alzheimer’s disease” study with magnetoencephalography in the early stages:
Javier de Felipe Oroquieta, Research Professor of the CSIC, Director of the Laboratory of Cortical Circuits UPM-CSIC, CTB, UPM, Cajal Institute. What makes us human? He tells us about the complexity of the brain:
Jesús Ávila de Grado, Research Professor Emeritus CSIC, Scientific Director of CIBERNED and the CIEN Foundation.
With a relevant career in the field of Neurodegenerative Diseases with special attention to the neuronal cytoskeleton. Explain the role of the Tau protein in Alzheimer’s disease:
Cristina Nombela Otero, Professor of Universidad Autónoma de Madrid, Postdoctoral Researcher at the IdISSC of the Hospital Clínico San Carlos.
He presented a study on deep brain stimulation:
In conclusion, it was pointed out that the attendees of the event requested through the surveys that the need for more days such as the one that took place was carried out, and during the debate, the need to have a website or space in which Patients may have access to a repertoire of resources for patients and family members.